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Eating Disorder Patient Misdiagnosis, Denial, and the Use of Medical Tests
The following is an excerpt from "Friendly Mirrors and Contented Closets" Click here to purchase
There exists a "grey area" somewhere between the medical and behavioral sciences that can
serve as a very powerful tool to help an eating disorder patient acknowledge what they are
doing to their body. It has to do with blood work. When a medical professional reviews a CBC
panel, they are looking for a specific diagnostic pattern, (as psychologists do when completing
a diagnostic examination). Blood levels need to be outside of a specific range in order to be
deemed clinically significant. Many eating disordered patients may not meet the criterion for
full blown anemia, but their blood levels indicate that this is certainly an impending possibility
(i.e., their blood levels are approaching the clinically significant range). Their bilirubin and
albumin levels fail to indicate liver disease, but the patient's levels are almost outside of the
normal range. I feel that this is important information for the Eating Disordered patient to know.
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For the majority who develop eating disorders, onset occurs during the period of
adolescent growth and maturation. As such, eating disorders carry profound hazards for
interrupting somatic and physiological development, especially in females Lifshitz & Moses,
1988). Young women who engage in eating disordered behaviors may experience a delay in
meeting typical physiological milestones. Menstruation can be adversely affected by dieting
and weight loss due to hormonal changes as well (Russell, 1985). This holds true even for
women who maintain adequate body fat while losing weight. For example, young women
need a body fat percentage of at least 17% to begin menstruating (Rintala & Mustajoki, 1992).
The link between eating disorders and fertility has begun to receive increasing attention in
the literature. Although this research is in its early stages, it appears that the impact of eating
disorders may have far-reaching consequences. This is where a trusted medical professional
comes in.
I am not exaggerating here; a competent medical
who can sufficiently emphasize the medical consequences
psychologist, I can say these things over and over,
like "Well what does she know, she is just a psychologist"
and see what my doctors says". To that I commend
phone with their doctor. The importance of finding
underscored sufficiently. Further, educating the patient
more effective than dismissing them as "O.K.".
I have had a few patients who come to me in an Anorexic state who want to get better
and try very hard during the re-feeding process. Similar to Anorexia, they feel very full and
uncomfortable during the re-feeding and have to be reminded that it is simply their stomach
stretching and their metabolism awakening. The difference is that, on occasion, an "Anorexic"
fails to gain weight. As long as a significant other is supervising their meals (and the hour or
two afterward), there is a chance that there is actually an active physical illness underlying the
weight loss and difficulty gaining. Questions regarding whether the physical illness caused
the weight loss or whether it was truly a clinical eating syndrome can only be gleaned from
a thorough clinical interview. Regardless, a thorough physical examination and consultation
with a medical professional is essential. In short, there is a specific pattern of weight gain that
is most typical of Anorexics. When that pattern doesn't emerge (after the family is supervising
the patient), there is a chance that a medical illness, such as intestinal malabsorption or an
overactive thyroid, may be to blame. When the intestines fail to absorb nutrients and calories,
glucose never enters the bloodstream, thus causing weight loss. An overactive thyroid
increases overall metabolism so that the energy requirements of the body are unreachable
with normal food intake, thus resulting in weight loss. Sometimes a person may look "Anorexic"
but they truly have a medical problem and are in need of professional attention. If you are
wondering if a person has Anorexia, rather than approach them with that idea, let them know
about these medical illnesses. Approaching them with a non weight-related concern could (at
least) get them into a doctor's office. From there it is the physicians determination.
NAVIGATING AROUND PRIVACY LAWS
HIPPA laws prevent just about everyone from gleaning information about a loved one
from a provider of medical services. Whereas this is a wonderful way to protect privacy, it can
sometimes unintentionally discourage significant others from contacting the physician with
relevant concerns. Anyone can contact a service provider and give the professional information
about the patient. Professionally, I prefer to be contacted with information. Service providers
cannot, however, offer any information about the patient to the concerned significant other.
Confidentiality is breeched as soon as the professional even acknowledges to the significant
other that they know the person. Difficult thing to do; being on the phone with a frantic parent
of a 22 year old and not being able to outline the treatment plan or even acknowledge that
their child is (or is not) attending sessions. Involving family early on in treatment is helpful here.
In order to minimize this discomfort and be sure that the provider is in receipt of this important
information, I suggest that significant others write a letter directly to the medical provider.
Phone messages are easily forgotten or misplaced in a busy doctor's office. A letter is a legally
binding source of medical information, which, if lost or overlooked, could result in malpractice
charges.
HIPPA laws mandate that the medical professional provide each patient a copy of any
part of their medical chart, upon request, including blood work results. Blood panels are
relatively easy to read and with the help of websites such as http://www.nlm.nih.gov/medlineplus/ency/article/003642.htm
you can gain a good understanding about what
exactly is going on in your body metabolically. Keep in mind that the only professional
that can offer an interpretation of these results is a person trained as a medical professional
(e.g., M.D., P.A., R.N.,& L.P.N.) Professionals like myself cannot offer interpretations about the
blood work results, but can encourage the patient to receive a copy of the results and attempt
to educate themselves about it's meaning. Conversely, if a mental health professional fails
to collaborate sufficiently with a medical professional and determine if the recommended
medical procedures were completed, malpractice charges can ensue against the mental health
worker. Mental health workers are caught in a conundrum of sorts: they are held liable for
inappropriately interpreting medical test results, yet can also be deemed negligent if they fail to
acknowledge the importance of the blood tests actually being completed. Requesting that the
medical professional forward a copy of the results to the mental health provider appears to be
the best standard of treatment.
INVOLUNTARY HOSPITALIZATION
Another "grey area" that needs to be carefully managed is when an involuntary
hospitalization is impending. Involuntary in this case means "against the patients will"; they are
unwilling to agree to an inpatient stay. In general, mental health professionals are only allowed
to mandate that a patient go to the hospital with the assistance of the police or in accordance
with the recommendation of an M.D. Even in that case, the patient is likely to only be admitted
if he or she is imminently dangerous to his or herself or others. So what does this mean when
it comes to eating disorders? First, unless actively suicidal, an eating disordered patient is only
in imminent danger when a medical professional deems that the patient is medically unstable.
Since the patient will then be admitted to a medical unit until medically stable, there is no
guarantee that the patient will subsequently be forced to enter eating disorder treatment
against their will. This underscores, again, that collaboration with a medical professional is
essential to successful treatment of eating disorders. This, however, leaves the mental health
professional, at times, helpless if the patient is uncooperative and resisting needed in-patient
services. Involving family and partners of the patient is critical here. Increasing the frequency
in which blood is drawn can also be important to "catching" the transient fluctuations in
electrolytes and other blood levels.
The preceding is an excerpt from "Friendly Mirrors and Contented Closets" Click here to purchase
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